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Covid19 Media webcast

Join the Epilepsy Foundation for an Evening with Epilepsy Advocate and Reality TV Star, Rick Harrison

Watch this fab live Webcast during Covid19 pandemic

WHAT

Reality TV Star, epilepsy advocate and person with epilepsy Rick Harrison is joining an Epilepsy Foundation Facebook Live. Rick will discuss his role as an Epilepsy Foundation board member, what it was like for him growing up with epilepsy, his life in his home state of Nevada during COVID-19, and fun stories from his famous shop and television show, “Pawn Stars.”

WHERE

Facebook – https://www.facebook.com/EpilepsyFoundationofAmerica/videos/593310541393628/

Just click the above link to watch the hour long entertaining webcast, from the Epilepsy Foundation of America ( http://www.epilepsy.com ) and Talk About It ( http://www.talkaboutit.org ).

WHY

Even in times like these, seizures don’t stop, and neither has the fight to END EPILEPSY®. Over a lifetime, 1 in 10 people will have a seizure, and 1 in 26 will be diagnosed with epilepsy.

Having lived with epilepsy throughout most of his childhood and teens, Rick became a national spokesperson for the Epilepsy Foundation in 2013 and since, has partnered with the Foundation to create awareness and help address the needs of the epilepsy community.

ABOUT EPILEPSY

According to the World Health Organization, epilepsy is the most common serious brain disorder worldwide with no age, racial, social class, national or geographic boundaries. The U.S. Centers for Disease Control & Prevention (CDC) estimates that 3.4 million people in the United States are affected by epilepsy. It is the underlying tendency of the brain to produce seizures which are sudden abnormal bursts of electrical energy that disrupt brain functions.

ABOUT THE EPILEPSY FOUNDATION

With a network of nearly 50 partners throughout the United States, the Epilepsy Foundation is leading the fight to END EPILEPSY®. The Foundation connects people to treatment, support and resources; leads advocacy efforts; funds innovative research and the training of specialists; and educates the public about epilepsy and seizure first aid. For more than five decades, the Epilepsy Foundation has shone a light on epilepsy to promote awareness and understanding, and to advocate for laws that matter to people with epilepsy, while also funding $68.7 million for epilepsy research and supporting 3,091 epilepsy investigators and specialists in their early careers. To learn more, visit epilepsy.com or call 1.800.332.1000. Follow us on Facebook and Twitter.

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Categories
Campaigns epilepsy events Media news

Facebook Live – January 16th 2019 : “A Mind Unraveled” with Kurt Eichenwald

Watch this Facebook Live – on Wednesday, January 16, 2019, at 8:00 pm. ET

The epilepsy journey can be a traumatic experience, especially when people are not given correct information or do not see an epilepsy specialist. Myths, misbeliefs, and lack of knowledge all contribute to the misperceptions and negative life experiences faced by so many people with epilepsy.

Kurt Eichenwald is a national award-winning journalist and New York Times bestselling author. He will share his epilepsy journey by talking about his book, A Mind Unraveled, on a Facebook Live on January 16 at 8:00 p.m. ET. The stories about his life may resonate with you or someone you know. Others may be surprised by the persistent challenges and difficulties obtaining proper epilepsy care in this day and age.

Watch online, click the link : www.facebook.com/EpilepsyFondationOfAmerica

This broadcast will also be archived on the facebook page to watch again if you miss it.

Join the Facebook Live on January 16 for a chance to get a free copy of A Mind Unraveled.

  • During the Facebook Live, you will get instructions on how to obtain a copy of the book.
  • A limited quantity of books is available so make sure you tune in to get one!

This program is supported by NeuroPace, Inc. Please note the contact information shared to receive a copy of A Mind Unraveled by Kurt Eichenwald will not be added to any email or mailing list from the Epilepsy Foundation or NeuroPace, Inc. You can choose to receive information from one or both organizations by checking the appropriate box when entering to win a free copy.

Categories
epilepsy events Group News meetings news

Notes for Meeting: 2nd October 2018

Here are some notes and links to what we are talking about on this month’s Bristol #Epilepsy Support Group meeting:

DWP STOP accepting new Universal Credit claims from people on PIP and revert back to legacy system

https://universalcreditsuffer.com/2018/09/30/dwp-stop-accepting-new-universal-credit-claims-from-people-on-pip-and-revert-back-to-legacy-system/

Epilepsy Society Conference 2018 – report back

https://www.epilepsysociety.org.uk/annual-conference-1

Epilepsy Foundation of America & Talk About It: talk on Cannabis and CBD