Categories
Covid19 Media webcast

Join the Epilepsy Foundation for an Evening with Epilepsy Advocate and Reality TV Star, Rick Harrison

Watch this fab live Webcast during Covid19 pandemic

WHAT

Reality TV Star, epilepsy advocate and person with epilepsy Rick Harrison is joining an Epilepsy Foundation Facebook Live. Rick will discuss his role as an Epilepsy Foundation board member, what it was like for him growing up with epilepsy, his life in his home state of Nevada during COVID-19, and fun stories from his famous shop and television show, “Pawn Stars.”

WHERE

Facebook – https://www.facebook.com/EpilepsyFoundationofAmerica/videos/593310541393628/

Just click the above link to watch the hour long entertaining webcast, from the Epilepsy Foundation of America ( http://www.epilepsy.com ) and Talk About It ( http://www.talkaboutit.org ).

WHY

Even in times like these, seizures don’t stop, and neither has the fight to END EPILEPSY®. Over a lifetime, 1 in 10 people will have a seizure, and 1 in 26 will be diagnosed with epilepsy.

Having lived with epilepsy throughout most of his childhood and teens, Rick became a national spokesperson for the Epilepsy Foundation in 2013 and since, has partnered with the Foundation to create awareness and help address the needs of the epilepsy community.

ABOUT EPILEPSY

According to the World Health Organization, epilepsy is the most common serious brain disorder worldwide with no age, racial, social class, national or geographic boundaries. The U.S. Centers for Disease Control & Prevention (CDC) estimates that 3.4 million people in the United States are affected by epilepsy. It is the underlying tendency of the brain to produce seizures which are sudden abnormal bursts of electrical energy that disrupt brain functions.

ABOUT THE EPILEPSY FOUNDATION

With a network of nearly 50 partners throughout the United States, the Epilepsy Foundation is leading the fight to END EPILEPSY®. The Foundation connects people to treatment, support and resources; leads advocacy efforts; funds innovative research and the training of specialists; and educates the public about epilepsy and seizure first aid. For more than five decades, the Epilepsy Foundation has shone a light on epilepsy to promote awareness and understanding, and to advocate for laws that matter to people with epilepsy, while also funding $68.7 million for epilepsy research and supporting 3,091 epilepsy investigators and specialists in their early careers. To learn more, visit epilepsy.com or call 1.800.332.1000. Follow us on Facebook and Twitter.

# # #

Categories
epilepsy Media news

Sarah Reid: How my Daughter Layla (age 7) wrote a book

Epilepsy for Kids - Book CoverSarah Reid (Bristol Epilepsy Support Group member) explains how her seven-year-old daughter Layla has written a book, “Epilepsy for Kids”, for children who have a family member with Epilepsy,

Epilepsy for Kids by Layla Reid, published by Pomegranate Books, Bristol £6.50 (p&p free for limited period).

(or CLICK HERE – to buy Epilepsy for Kids by Layla Reid , on Amazon )

“I had been hunting high and low for ages to find a book explaining epilepsy to my seven-year-old daughter Layla. I have come across so many books aimed at children who have epilepsy and adults who have epilepsy – but nothing for a child who has a family member with epilepsy.

Layla has witnessed me having seizures many times. At the worst point I was having five seizures a day.

I remember her getting so upset at times when I have been semi-conscious that I felt like crying. On one occasion I had a seizure at my parents’ house. I was surrounded by paramedics. My dad was trying to reassure her in the kitchen as she was screaming for me. I just wanted to run and tell her “It’s ok. Mummy’s here”. But I couldn’t, as my body wouldn’t do what I wanted it to do.

I feel useless at times and want Layla to understand why I can’t always do the things that mummies are supposed to do, like baking cakes together when we’re on our own or preparing the tea. Last time I tried I had a seizure and my husband Mark came home to a kitchen full of smoke. The thought that I could have set the house on fire and hurt Layla fills me with horror. I would have never forgiven myself.

I want Layla to understand why I can’t drive, why I always have to rely on others for lifts and why I can’t have a bath or shower when I’m on my own. I want her to understand why I worry about my clothes and whether anyone can see the incontinence pads which I wear in case I have a seizure and lose control of my bladder. This can be very upsetting and embarrassing.

I really hoped that finding a book to explain epilepsy would help Layla to understand these things.

Then I noticed that Layla was carrying around a notepad and pen. Inside she had drawn pictures and written about me and my seizures. It was things like, “Mummy has written front and back door on her keys so I can open the door and let the ambulance people in.”

That was when it struck me that perhaps Layla could write a book for children who have a parent with epilepsy.

Seeing the book now makes me so happy and proud of Layla. Each page has a simple drawing and explanation in Layla’s own words about how seizures affect everyday life. I hope it will let other children know they are not alone. I hope that by explaining about seizures it will help them to cope.

Since the book has been published I have met some amazing people, many of them with epilepsy, and some who have friends or relatives with epilepsy. One lady said she wished Layla’s book had existed when she was a girl as her brother has epilepsy and his seizures used to terrify her. She didn’t know what they were or what to do.”

The media has shown an incredible amount of interest in the book, both locally and nationally, and with the help of the Bristol Epilepsy Support Group and Epilepsy charities in the UK, such as Epilepsy Society and Epilepsy Action, I am confident we can do a lot to raise awareness about epilepsy.

[hr]

Epilepsy for Kids by Layla Reid, published by Pomegranate Books, Bristol £6.50 (p&p free for limited period).

(or CLICK HERE – to buy Epilepsy for Kids by Layla Reid , on Amazon )