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epilepsy news Podcast

PODCAST: Episode 2 | UK Epilepsy Podcast

This podcast series recorded, produced and presented by Sam Downie of Dsoundz Media and co-hosted with @AlastairMillen . In which they talk about epilepsy and the various aspects of the condition.

In the 2nd episode of the UK Epilepsy Podcast, join Sam + Alastair and guests Kristen and Ken, as we Talk about Epilepsy and the support that is out there around the world.

Episode 02: Epilepsy Foundation (4th October 2012)

Audio Duration: 1 Hour
[mejsaudio src=”http://archive.org/download/Episode2UkEpilepsyPodcast/ep2_ukepilepsypodcast.mp3″%5D

In this episode Ken Lowenberg, Senior Director of Communications, at the Epilepsy Foundation (USA) and one of the co-founders of TalkAboutIt.org a non-profit Epilepsy awareness charity – joins us, and talks about what and who the Epilepsy Foundation are, and what they do.

Ken talks about his work at The Epilepsy Foundation and The ‘Talk About It!’ Foundation and how he came to work with Greg Grunberg developing Talk About It! (www.talkaboutit.org ) and what these organisations do for people with Epilepsy, engaging with many television and movie celebrity’s by asking them to lend a hand in helping raise awareness about Epilepsy that effects over 65 Million people around the world.

We are also joined by Kirsten, who talks about her experiences as a mother of her daughter, Meg who has epilepsy and how talking about it is so important with schools. So that the teachers and students know what to do if Meg has a seizure.

Please Note: This podcast was recorded using Skype, so there may be a few audio problems on this recording.

This podcast is hosted, edited and produced by Sam Downie from Dsoundz Media, find us online at: www.dsoundz.co.uk

LINKS MENTIONED IN THIS PODCAST EPISODE:
Talk About It : www.talkaboutit.org
The Epilepsy Foundation : www.epilepsyfoundation.org

THE APP WE MENTION :
Yowza! : www.getyowza.com

FOLLOW US ON TWITTER:
Ken Lowenberg : @klowenberg
Kristen : @cheekymonkey8
Alastair : @AlastairMillen
Sam : @samdownie
Greg Gunberg : @greggunberg
Talk About It : @talkaboutitorg

Thanks for listening. Thanks for Talking About Epilepsy !

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Categories
epilepsy news Podcast

PODCAST: Episode 1 | UK Epilepsy Podcast

This podcast series recorded, produced and presented by Sam Downie of Dsoundz Media and co-hosted with @AlastairMillen . In which they talk about epilepsy and the various aspects of the condition.

Episode 01: Talk About It

Date of Podcast: 5th September, 2012
Audio Duration: 1 Hour
[mejsaudio src=”http://archive.org/download/EpilepsyUkChatEpisode01Talkaboutit/epilepsy_podcast01_sept9_2012_talkaboutit.mp3″%5D

In this 1 hour podcast Sam and Alastair talk about their own experiences with epilepsy and how it effects them. They also talk about what support is out there and where to find it.

This podcast is brought to you in conjunction with the ‘Talk About It!’ Foundation, a non-profit Epilepsy awareness charity based in the USA, founded by Actor/Musician/App maker Greg Grunberg and Ken Lowneburg, founder of The Epilepsy Foundation.

This podcast, is part of their Talk About It! epilepsy awareness weekend, which started on Friday the 7th September 2012, and finished on the 9th September 2012.

For more information on the ‘Talk About It!’ weekend visit:  http://www.talkaboutit.org/weekend2012/

Visit the ‘Talk About It!’ website, and watch famous Celebrity’s talking with Greg Grunberg about Epilepsy at:   http://talkaboutit.org/

To join the ‘Talk About It!’ community, and join in with the chat – visit: http://talkaboutitorg.ning.com/

Thank you for listening, we aim to raise Epilepsy awareness- via us who have epilepsy and these podcasts.
Categories
Action Campaigns Department For Work And Pensions epilepsy events news Protests

Take Epilepsy Action Campaign

Take epilepsy action is a national campaign to raise awareness among the general public of different kinds of seizures and appropriate first aid.

Interested?
To find out more about how you can get involved, contact the PR and campaigns team.

Email
action@epilepsy.org.uk or call Epilepsy Action on 0113 210 8889The campaign will run for 12 months and target different audiences with the same messages about different kinds of seizures and first aid. If you have an opinion about the different kinds of people we should target, please use the email address above.

Or check out the website – www.epilepsy.org.uk

… where you will find photographs of the Bristol launch and a film showing how to provide first aid during a seizure and much more on Epilepsy Actions website.

Categories
epilepsy events news The Epilepsy Society

National Epilepsy Society is seeking volunteers

The Epilepsy Society ( previously the NSE) is on the lookout for volunteers to help inform people about epilepsy in Bristol and the surrounding area.  

The Epilepsy society runs an information network, distributing information and giving support to people with epilepsy, their families, carers and others in the community.  If you are interested in joining Bristol team call Brenda Willis on 01803 882535 or email her at brenda.willis@epilepsysociety.org.uk.You don’t need knowledge of epilepsy as volunteers receive training. You just need to be a good listener, keen to help, enjoy meeting people and are happy to learn new skills.

The Epilepsy Society is also searching for people to help with its schools awareness programme. Trained volunteers spend time talking to pupils and staff about epilepsy – so if you can see yourself providing information at hospitals or clinics or visiting schools please get in touch.