Interview with Dr Mona Sazgar, Epilepsy Epileptologist, by Sam Downie at #EADDL 2016
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July Meeting: What Took Place
Notes from our meeting in July 2017.
News: Pregnant Women ‘Unaware’ of Epilepsy Drug Risks
Updated: 27th Feb, 2013 Watch on BBC iPlayer, BBC Inside Out London : Dr Rosemary Leonard asks if GPs are failing to warn their pregnant patients about the risks of one of the UK's most widely-used epileptic drugs. Link to Watch BBC iPlayer : http://www.bbc.co.uk/iplayer/episode/b01qzfrp/Inside_Out_London_25_02_2013/ [hr] From BBC London NEWS : http://www.bbc.co.uk/news/uk-england-london-21523434 By Zack Adesina - BBC Inside… Continue reading News: Pregnant Women ‘Unaware’ of Epilepsy Drug Risks
PURPLE DAY – MARCH 2013
There isn’t just one reason to hold an event for Purple Day, there are 600,000! That’s the number of people living with epilepsy in the UK right now. Event details When: Tuesday 26 March 2013 Where: Nationwide About Purple Day Purple Day is the international day for epilepsy awareness. To celebrate this year, Epilepsy Action will quite literally… Continue reading PURPLE DAY – MARCH 2013
Event: Epilepsy Action in Bristol – Treatment Options – 16th Feb, 2013
For More Information About This Event, Please Visit This Link: http://www.epilepsy.org.uk/involved/local-events/treatment-options When ? : 16 February, 2013 Time of Event: 12pm to 4pm Where ? : The Watershed, 1 Canons Road, Bristol, BS1 Cost of Event: £6 / £4 (cons) [box]CLICK HERE TO BOOK YOUR TICKET FOR THIS EVENT IN BRISTOL[/box] This series of half day events… Continue reading Event: Epilepsy Action in Bristol – Treatment Options – 16th Feb, 2013
NHS TEDMEDLIVE – Bristol NHS Health Partners want to hear your views on upcoming changes
Bristol HealthPartners are keen to hear from the citizens of Bristol on what they think the biggest health challenges are for the city. Please could you forward this message/information to members of your patient groups. In partnership with TEDMED, Bristol Health Partners are running a TEDMEDLIVE conference in Bristol on April 18th and 19th and… Continue reading NHS TEDMEDLIVE – Bristol NHS Health Partners want to hear your views on upcoming changes
A Critical Time for Epilepsy in the UK
From the Epilepsy Action website : http://www.epilepsy.org.uk/involved/campaigns/a-critical-time Today Epilepsy Action has launched its new report, A Critical Time for epilepsy in England. The report shows that epilepsy health services in England are not good enough and vary in many areas. It also shows that many of the new organisations responsible for NHS services are not considering epilepsy… Continue reading A Critical Time for Epilepsy in the UK
Brain on Fire , an extract from the book by Susannah Cahalan
Link from The Guardian (Sun 20th Jan, 2013): http://www.guardian.co.uk/books/2013/jan/13/susannah-cahalan-brain-fire-extract Brain on Fire: 'Blood and foam began to spurt out of my mouth' She was 24 when she began to suffer terrifying seizures. In this extract from her new book, she describes the first such incident After a series of uncharacteristic outbursts, episodes of pins and… Continue reading Brain on Fire , an extract from the book by Susannah Cahalan
People with Epilepsy are set to loose out on PIP from 2013
Now that the transfer from DLA to PIP is pretty much a done deal, with a few more tweaks likely - but otherwise leaving up to half a million of us with Epilepsy and other Disability's out in the cold with a loss of vital benefits. It's not rocket science to see that many of… Continue reading People with Epilepsy are set to loose out on PIP from 2013
