Talk About Epilepsy Podcast with Greg Grunberg

Talk About It Podcast : Episode 1

Link : https://www.stitcher.com/podcast/talk-about-it-4

Episode Info
Actor Greg Grunberg (A Star Is Born, Star Wars, Star Trek, Heroes, Alias) takes the Talk About It organization to the next level with this brand new podcast!

In this episode, he sits down with filmmakers such as director JJ Abrams (Star Wars, Star Trek) and celebrities that use their platforms to help remove the stigma of Epilepsy and promote the spreading of knowledge about the condition.

https://app.stitcher.com/splayer/f/348159/58200642

About This Show
Talk About It! – The Podcast, hosted by Greg Grunberg and produced by the Epilepsy Foundation, is a new and exciting way to help raise epilepsy education and awareness. Each episode will include interviews and profiles of people living with epilepsy, facts and stats about epilepsy and seizures, tips on healthy living, and special guests from all over the entertainment world.

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Group Meeting Dates from January to April 2019

Hello, to keep you updated, here’s the dates of our next four Group meetings, for 2019. All meetings start at 7PM, and end by 9PM.

  • 8th January, 2019
  • 5th February, 2019
  • 5th March, 2019
  • 2nd April, 2019

Our meeting schedule can be added to your online diary, just click this link : 

https://calendar.google.com/calendar?cid=YnJpc3RvbGVwaWxlcHN5QGdtYWlsLmNvbQ

 

Facebook Live – January 16th 2019 : “A Mind Unraveled” with Kurt Eichenwald

Watch this Facebook Live – on Wednesday, January 16, 2019, at 8:00 pm. ET

The epilepsy journey can be a traumatic experience, especially when people are not given correct information or do not see an epilepsy specialist. Myths, misbeliefs, and lack of knowledge all contribute to the misperceptions and negative life experiences faced by so many people with epilepsy.

Kurt Eichenwald is a national award-winning journalist and New York Times bestselling author. He will share his epilepsy journey by talking about his book, A Mind Unraveled, on a Facebook Live on January 16 at 8:00 p.m. ET. The stories about his life may resonate with you or someone you know. Others may be surprised by the persistent challenges and difficulties obtaining proper epilepsy care in this day and age.

Watch online, click the link : www.facebook.com/EpilepsyFondationOfAmerica

This broadcast will also be archived on the facebook page to watch again if you miss it.

Join the Facebook Live on January 16 for a chance to get a free copy of A Mind Unraveled.

  • During the Facebook Live, you will get instructions on how to obtain a copy of the book.
  • A limited quantity of books is available so make sure you tune in to get one!

This program is supported by NeuroPace, Inc. Please note the contact information shared to receive a copy of A Mind Unraveled by Kurt Eichenwald will not be added to any email or mailing list from the Epilepsy Foundation or NeuroPace, Inc. You can choose to receive information from one or both organizations by checking the appropriate box when entering to win a free copy.

Join us at @EpilepsyFoundationofAmerica

PODCAST: Episode 4 – EPILEPSY AND WOMEN

Dr/Consultant Howard Faulkner, is a Epilepsy Neuro-Consultant in Bristol. In this podcast recording, Dr Faulkner talks about WOMEN AND EPILEPSY, providing a great insight and information in how Epilepsy and Seizures effect the female body, at all ages.

Podcast Duration: 1 Hour
Podcast Recorded: November 2012
Podcast Recorded at: Bristol Epilepsy Support Group Monthly Meeting

MORE INFORMATION ABOUT FEATURED SPEAKER:

NAME: Dr Howard Faulkner
Link: http://www.nbt.nhs.uk/our-services/a-z-consultants/dr-howard-faulkner

Year of first qualification: 2002, Imperial College, London
Specialty: Neurology
Clinical interest: Epilepsy, Epilepsy Surgery

Dr Howard Faulkner completed his BSc, PhD and MBBS at Imperial College, London before moving to Bristol for his Medical and General Neurology training. He then completed an Epilepsy and EEG Fellowship in Sydney, Australia, and was appointed as a consultant in 2011.

Dr Faulkner provides a full range of epilepsy services from first seizure clinics to epilepsy surgery workup.

PODCAST PRODUCTION NOTES:

This podcast was recorded and produced by SAM DOWNIE from Dsoundz Media.
Visit the website, at: http://www.dsoundz.co.uk

Follow Sam Downie on Twitter at: @samdownie / http://www.twitter.com/samdownie

This is Episode 4 from the UK Epilepsy Podcast, and it comes from the Bristol Epilepsy support group, in Bristol, SW England. Follow the hashtag on Twitter: #ukepilepsypodcast for updates and more. And follow @BristolEpilepsy on Twitter ( http://www.twitter.com/BristolEpilepsy ).

THANKS FOR LISTENING !

Notes for Meeting: 2nd October 2018

Here are some notes and links to what we are talking about on this month’s Bristol #Epilepsy Support Group meeting:

DWP STOP accepting new Universal Credit claims from people on PIP and revert back to legacy system

https://universalcreditsuffer.com/2018/09/30/dwp-stop-accepting-new-universal-credit-claims-from-people-on-pip-and-revert-back-to-legacy-system/

Epilepsy Society Conference 2018 – report back

https://www.epilepsysociety.org.uk/annual-conference-1

Epilepsy Foundation of America & Talk About It: talk on Cannabis and CBD

Fundraising Gig for Epilepsy in Bristol – Aug 10, 2018

36522930_1282564661879126_8313714877143187456_nJoin AFO Audio and friends, for an exciting fundraising gig for Epilepsy Society to be held in Bristol on FRIDAY 10TH AUGUST, 2018.

Time: 7PM

Address: The White Hart Pub, 84 Bedminster Parade, Bedminster, Bristol , BS3 4HL

Featuring several bands : Hannah Jane, Coldwater, Rokyoot, Place of Kings, Zendium Moon and Ellie Moonshine & The Prohibition Band.

Suggested Donation Entry : £5 (or more)

More Information from : https://www.facebook.com/afo.audio

Take Part In Epilepsy Research ! – at Exeter University

Do you have lived experience of #Epilepsy, or care for somebody that does? Come to the workshop on Wed 21st March, held at #Exeter University – to help us develop a new approach to #Epilepsy Surgery using mathematical modelling to understand where #Seizures start and how they spread throughout the #Brain .  Here’s the info :

Improving surgical treatment for epilepsy workshop

  • A third of people diagnosed with epilepsy do not respond to drug treatments and surgery is the only treatment option
  • Surgery is often not completely successful as it is difficult to identify exactly which areas of the brain are causing the epilepsy
  • Researchers in Exeter are developing a new approach to epilepsy surgery using mathematical modelling to understand where seizures start and how they spread throughout the brain.

How can you get involved?

We are keen to invite people who have, or care for someone with epilepsy to a workshop to discuss this research. If you have had surgery or have been offered or are considering surgery we would be particularly interested in hearing from you.

Join us at our workshop:

WHEN: Wednesday 21 March 2018
TIME: afternoon (exact time TBC)
WHERE: Living Systems Building, University of Exeter, Stocker Road, EX4 4QD

Notes:

Refreshments will be provided
We will pay a small “thank you” payment of £25 and also reimburse your travel expenses (such as Train and Taxi). If you would like to join us, or for more information, please contact:

Silvia Bortoli, my email is: s.Bortoli@exeter.ac.uk
Leandro Junges, my email is: l.l.l.junges@exeter.ac.uk

This work is generously supported by an EPSRC Institutional Sponsorship Grant for Predictive Modelling in Healthcare:  http://www.exeter.ac.uk/pmh/