Category Archives: news

NEWS ALERT 🚨 : Some AED Medications Recalled

Please visit : https://www.gov.uk/drug-device-alerts/fmd-alert-class-2-mdr-123-05-19?cachebust=1561646198#Product-table Certain batches of three medicines for Parkinson’s, epilepsy and blood clots are being recalled in the UK, and patients are being asked to arrange a new prescription via their GP. The affected prescription-only medicines are : Neupro Vimpat Clexane with a B & S Healthcare label, the UK’s medicine regulator said. […]

Group Meeting Dates from January to April 2019

Hello, to keep you updated, here’s the dates of our next four Group meetings, for 2019. All meetings start at 7PM, and end by 9PM. 8th January, 2019 5th February, 2019 5th March, 2019 2nd April, 2019 Our meeting schedule can be added to your online diary, just click this link :  https://calendar.google.com/calendar?cid=YnJpc3RvbGVwaWxlcHN5QGdtYWlsLmNvbQ  

Facebook Live – January 16th 2019 : “A Mind Unraveled” with Kurt Eichenwald

Watch this Facebook Live – on Wednesday, January 16, 2019, at 8:00 pm. ET The epilepsy journey can be a traumatic experience, especially when people are not given correct information or do not see an epilepsy specialist. Myths, misbeliefs, and lack of knowledge all contribute to the misperceptions and negative life experiences faced by so many […]

Notes for Meeting: 2nd October 2018

Here are some notes and links to what we are talking about on this month’s Bristol #Epilepsy Support Group meeting: DWP STOP accepting new Universal Credit claims from people on PIP and revert back to legacy system https://universalcreditsuffer.com/2018/09/30/dwp-stop-accepting-new-universal-credit-claims-from-people-on-pip-and-revert-back-to-legacy-system/ Epilepsy Society Conference 2018 – report back https://www.epilepsysociety.org.uk/annual-conference-1 Epilepsy Foundation of America & Talk About It: talk […]

Blue Badge Gov Consultation 2018

People with hidden disabilities could enjoy new freedom with blue badge changes. Consultation expanding the Blue Badge criteria released. People with hidden disabilities could soon have greater access to blue badges under new plans from Transport Minister Jesse Norman today (21 January 2018). The proposals, which would herald the most significant changes since the blue badge […]

Sarah’s Epilepsy Fundraising Story

Sarah Reid – is an inspiration and a member of the Bristol Epilepsy Support Group, in Bristol, England. In spite of undergoing surgery for left temporal lobe epilepsy this year at Southmead Hospital, Bristol, Sarah has still managed to fundraise relentlessly for the five charities closest to her heart: Epilepsy Society, Young Epilepsy, Epilepsy Action, Young […]

Bristol University Neuroscience Festival 2018

Friday 23rd March  – 4:00 pm to 6:00 pm  – Great Hall, Wills Building, Park St Come and talk to scientists, investigate interactive exhibits and hands-on activities lead by scientists, explore the ‘Evolution of the brain’ and ‘Brain Art’ exhibitions and much more. Find out about current Neuroscience research through state of the art research […]

Epilepsy Survey for Women

New survey launched to find out how aware women and girls are of the risks around sodium valproate ​Data will be presented to public hearing into the medication in September Last survey showed 20 per cent  of women taking sodium valproate were not aware of the risks Take part in our survey and help provide vital information for public […]