New survey launched to find out how aware women and girls are of the risks around sodium valproate Data will be presented to public hearing into the medication in September Last survey showed 20 per cent of women taking sodium valproate were not aware of the risks Take part in our survey and help provide vital information for public … Continue reading Epilepsy Survey for Women
Interview with Dr Rami Apellian MD at Epilepsy Awareness Day and Expo at Disneyland Resort, 2016
Interview with Dr Mona Sazgar, Epilepsy Epileptologist, by Sam Downie at #EADDL 2016
get a Tap2Tag Medical Alert for half price this weekend only in the UK using this code !
Updated: 27th Feb, 2013 Watch on BBC iPlayer, BBC Inside Out London : Dr Rosemary Leonard asks if GPs are failing to warn their pregnant patients about the risks of one of the UK's most widely-used epileptic drugs. Link to Watch BBC iPlayer : http://www.bbc.co.uk/iplayer/episode/b01qzfrp/Inside_Out_London_25_02_2013/ [hr] From BBC London NEWS : http://www.bbc.co.uk/news/uk-england-london-21523434 By Zack Adesina - BBC Inside … Continue reading News: Pregnant Women ‘Unaware’ of Epilepsy Drug Risks
Bristol HealthPartners are keen to hear from the citizens of Bristol on what they think the biggest health challenges are for the city. Please could you forward this message/information to members of your patient groups. In partnership with TEDMED, Bristol Health Partners are running a TEDMEDLIVE conference in Bristol on April 18th and 19th and … Continue reading NHS TEDMEDLIVE – Bristol NHS Health Partners want to hear your views on upcoming changes
From the Epilepsy Action website : http://www.epilepsy.org.uk/involved/campaigns/a-critical-time Today Epilepsy Action has launched its new report, A Critical Time for epilepsy in England. The report shows that epilepsy health services in England are not good enough and vary in many areas. It also shows that many of the new organisations responsible for NHS services are not considering epilepsy … Continue reading A Critical Time for Epilepsy in the UK
Link from The Guardian (Sun 20th Jan, 2013): http://www.guardian.co.uk/books/2013/jan/13/susannah-cahalan-brain-fire-extract Brain on Fire: 'Blood and foam began to spurt out of my mouth' She was 24 when she began to suffer terrifying seizures. In this extract from her new book, she describes the first such incident After a series of uncharacteristic outbursts, episodes of pins and … Continue reading Brain on Fire , an extract from the book by Susannah Cahalan
Now that the transfer from DLA to PIP is pretty much a done deal, with a few more tweaks likely - but otherwise leaving up to half a million of us with Epilepsy and other Disability's out in the cold with a loss of vital benefits. It's not rocket science to see that many of … Continue reading People with Epilepsy are set to loose out on PIP from 2013
News from AGE UK website: http://www.ageuk.org.uk/latest-news/warning-over-free-bus-pass-funding/ Urban transport authority bosses have issued a warning about funding for the free bus pass for disabled , and elderly. Transport chiefs from the country's largest provincial cities say funding the scheme means spending on other transport services could face a cut of 75% in 10 years' time because although … Continue reading Warning over cuts to free bus pass for disabled in the uk
