Category Archives: Health

PODCAST: Episode 4 – EPILEPSY AND WOMEN

Dr/Consultant Howard Faulkner, is a Epilepsy Neuro-Consultant in Bristol. In this podcast recording, Dr Faulkner talks about WOMEN AND EPILEPSY, providing a great insight and information in how Epilepsy and Seizures effect the female body, at all ages.

Podcast Duration: 1 Hour
Podcast Recorded: November 2012
Podcast Recorded at: Bristol Epilepsy Support Group Monthly Meeting

MORE INFORMATION ABOUT FEATURED SPEAKER:

NAME: Dr Howard Faulkner
Link: http://www.nbt.nhs.uk/our-services/a-z-consultants/dr-howard-faulkner

Year of first qualification: 2002, Imperial College, London
Specialty: Neurology
Clinical interest: Epilepsy, Epilepsy Surgery

Dr Howard Faulkner completed his BSc, PhD and MBBS at Imperial College, London before moving to Bristol for his Medical and General Neurology training. He then completed an Epilepsy and EEG Fellowship in Sydney, Australia, and was appointed as a consultant in 2011.

Dr Faulkner provides a full range of epilepsy services from first seizure clinics to epilepsy surgery workup.

PODCAST PRODUCTION NOTES:

This podcast was recorded and produced by SAM DOWNIE from Dsoundz Media.
Visit the website, at: http://www.dsoundz.co.uk

Follow Sam Downie on Twitter at: @samdownie / http://www.twitter.com/samdownie

This is Episode 4 from the UK Epilepsy Podcast, and it comes from the Bristol Epilepsy support group, in Bristol, SW England. Follow the hashtag on Twitter: #ukepilepsypodcast for updates and more. And follow @BristolEpilepsy on Twitter ( http://www.twitter.com/BristolEpilepsy ).

THANKS FOR LISTENING !

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Take Part In Epilepsy Research ! – at Exeter University

Do you have lived experience of #Epilepsy, or care for somebody that does? Come to the workshop on Wed 21st March, held at #Exeter University – to help us develop a new approach to #Epilepsy Surgery using mathematical modelling to understand where #Seizures start and how they spread throughout the #Brain .  Here’s the info :

Improving surgical treatment for epilepsy workshop

  • A third of people diagnosed with epilepsy do not respond to drug treatments and surgery is the only treatment option
  • Surgery is often not completely successful as it is difficult to identify exactly which areas of the brain are causing the epilepsy
  • Researchers in Exeter are developing a new approach to epilepsy surgery using mathematical modelling to understand where seizures start and how they spread throughout the brain.

How can you get involved?

We are keen to invite people who have, or care for someone with epilepsy to a workshop to discuss this research. If you have had surgery or have been offered or are considering surgery we would be particularly interested in hearing from you.

Join us at our workshop:

WHEN: Wednesday 21 March 2018
TIME: afternoon (exact time TBC)
WHERE: Living Systems Building, University of Exeter, Stocker Road, EX4 4QD

Notes:

Refreshments will be provided
We will pay a small “thank you” payment of £25 and also reimburse your travel expenses (such as Train and Taxi). If you would like to join us, or for more information, please contact:

Silvia Bortoli, my email is: s.Bortoli@exeter.ac.uk
Leandro Junges, my email is: l.l.l.junges@exeter.ac.uk

This work is generously supported by an EPSRC Institutional Sponsorship Grant for Predictive Modelling in Healthcare:  http://www.exeter.ac.uk/pmh/

Bristol University Neuroscience Festival 2018

Bristol University Neuroscience Festival 2018

Bristol University Neuroscience Festival 2018

Friday 23rd March  – 4:00 pm to 6:00 pm  – Great Hall, Wills Building, Park St

Come and talk to scientists, investigate interactive exhibits and hands-on activities lead by scientists, explore the ‘Evolution of the brain’ and ‘Brain Art’ exhibitions and much more. Find out about current Neuroscience research through state of the art research posters.

Friday 23rd March  – 6:30 pm to 8:00 pm  – Victoria Rooms, Bristol University

Plenary lecture with Paul Howard-Jones: ‘The prehistory and future of the learning brain: How did we get this smart and what next?’

CLICK HERE TO BOOK YOUR FREE TICKETS

How does learning transform us biologically? What learning processes do we share with bacteria, jellyfish and monkeys? Is technology impacting on brain evolution?

These are just some of the questions explored on a fascinating journey through 3.5 billion years of brain prehistory.

Along the way, we discover:

  •  how the E. coli in our stomachs learn to find food
  •  why a little nap can help bees find their way home
  •  the many ways that action, emotion and social interaction have shaped our ability to learn and
  •  the central role of learning in our rise to top predator

Finally, this trek through time will lead us to ask: Faced with the unprecedented challenges of the 21st century, will evolution lead us to enhancement or extinction?

Saturday 24th March 2018 10am to 5pm , Great Hall, Wills Building, Park St

FREE Entry !

For all the public talks for which you need to book for, PLEASE CLICK HERE

For the event’s programme, PLEASE CLICK HERE to Download the PDF

NHS TEDMEDLIVE – Bristol NHS Health Partners want to hear your views on upcoming changes

northnhsbristol_logo

Bristol HealthPartners are keen to hear from the citizens of Bristol on what they think the biggest health challenges are for the city. Please could you forward this message/information to members of your patient groups.

In partnership with TEDMED, Bristol Health Partners are running a TEDMEDLIVE conference in Bristol on April 18th and 19th and want to canvass your views. One of the sessions at the event will be chosen by the people of Bristol, (in association with The Bristol Post) on what you think are the biggest health challenges for the city.

Please see the links below for more background information, read what the press say and how to register for the event:

To find our more, (CLICK HERE TO DOWNLOAD THE PDF LETTER) from the North Bristol NHS Trust

http://www.thisisbristol.co.uk/think-Bristol-s-biggest-health-challenges/story-17890953-detail/story.html

And Register your interest for the event on the Bristol Health Partners website (click link below):

http://www.bristolhealthpartners.nhs.uk/tedmed-live-bristol/

 

A Critical Time for Epilepsy in the UK

From the Epilepsy Action website : http://www.epilepsy.org.uk/involved/campaigns/a-critical-time

Today Epilepsy Action has launched its new report, A Critical Time for epilepsy in England. The report shows that epilepsy health services in England are not good enough and vary in many areas. It also shows that many of the new organisations responsible for NHS services are not considering epilepsy in their plans for the future.

Epilepsy Action’s Vice President, Laura Sandys MP, will later formally launch the report at a reception in the House of Commons. Members of Parliament, Members of the House of Lords, key organisations and people with epilepsy will all be in attendance to hear the findings of the report, and Epilepsy Action’s recommendations to improve services.

The surveys

Last year we conducted four surveys around health services for people with epilepsy in England. We believe this makes up the most comprehensive study of epilepsy services ever carried out in the UK. These surveys were of:

  • People with epilepsy.
  • Acute trusts (hospitals and Foundation trusts that provide services).
  • Primary care trusts, primary care trust clusters and newly forming clinical commissioning groups (who provide and buy health services for people).
  • Local authorities, who will soon have a role in deciding local health priorities.

The results from these surveys showed that the services provided at the moment are not good enough.

The headlines

We found that the services currently being provided are not meeting the needs of people with epilepsy. These results mirror similar findings uncovered by Epilepsy Action’s 2009 report, Epilepsy in England: time for change. Just as then, we have found that access to specialists can depend upon where you live. In some places the basic elements of an epilepsy service, such as an epilepsy specialist nurse, are missing.

We also found that not enough is being done to plan for better services once changes to the NHS, planned for April, have taken place. Although we surveyed the organisations during the big NHS changes, it was clear that epilepsy was not featuring in plans as it should have been. This leaves us concerned that there are no plans to address these gaps over the next few years.

Recommendations

Our report carries 10 recommendations that we believe, if carried out, would significantly improve epilepsy services. They include:

  • Each clinical commissioning group agreeing to carry out an assessment of the needs of their patients with epilepsy.
  • All clinicians to make sure their patients with epilepsy have been offered a care plan, and to help them create one if they haven’t.
  • Members of Parliament to follow up this report with their local health trusts to see that they make plans to address the problems we’ve identified.
  • The Health Select Committee in Parliament to conduct a first ever inquiry into epilepsy services. This would hopefully lead to an action plan to address any problems that the Committee identifies.
  • To see all our Recommendations in full, please read our full report.

Copies of the report

This report is aimed at clinicians, health service commissioners and elected officials. However anyone can download a copy. (<< click on this link to download the PDF document of the report)

If you are a clinician or a commissioner, or you are campaigning with us, you can get a free hard copy of this report. To do this, please get in touch with us using the details at the bottom of this page.

Campaign with us

Epilepsy Action is making sure that all MPs, Peers, hospital trusts, clinical commissioning groups and local authorities get a copy of the report. We will be including any relevant results we have for their local area.

However we do not want the report to gather dust on a shelf, without any changes coming as a result. So we are asking our supporters to write to their new CCG and their local authority (council) to ask what actions they will be taking now that they have seen our report.

To help with this, we have made some of the key statistics for each area available on a map. There are two maps – one shows the responses from local authorities, and one which shows what health trusts told us.

We are then encouraging our supporters to promote our report to the service planners in your part of the country.

Below we have drafted two letters to help with this.

  • You can write to your new clinical commissioning group, to ask what plans they have to improve services for people with epilepsy.

Find the contact details of your new CCG. If you are not sure which CCG you belong to, you can contact Epilepsy Action’s campaigns team to help you find out.

You can use (download) this template letter as a starting point to help with your own letter.

  • You can write to your local council, who will soon have new responsibilities for planning local health and social care services.

Find the contact details of your local authority.

You can use (download) this template letter as a starting point to help with your own letter.

If you do write to your local CCG or council, tell us how you get on. This will help us to form a picture of how services are developing around England.

If you would like more information about the research or how you can campaign with us, please contact the Campaigns team by either emailing campaigns@epilepsy.org.uk or calling Epilepsy Action on: 0113 210 8800.

If you work for a NHS health trust, a PCT, a Commissioning Group or local council, and believe we have incorrectly or inaccurately recorded you work we would be happy to receive new information and will update our records accordingly. Please get in touch with the Campaigns team by emailing campaigns@epilepsy.org.uk or calling 0113 210 8800.

Thanks!

PLEASE SHARE AND TALK ABOUT THIS REPORT ! 

 

Warning over cuts to free bus pass for disabled in the uk

News from AGE UK website:

www.ageuk.org.uk/latest-news/warning-over-free-bus-pass-funding/

Urban transport authority bosses have issued a warning about funding for the free bus pass for disabled , and elderly.

Transport chiefs from the country’s largest provincial cities say funding the scheme means spending on other transport services could face a cut of 75% in 10 years’ time because although state funding is being reduced, costs are increasing.

Bosses from passenger transport executives in Greater Manchester, Merseyside, South Yorkshire, Tyne and Wear, West Midlands and West Yorkshire have now written to Transport Secretary Patrick McLoughlin to call for more central Government funding.

They say Government funding for providing the bus passes will be cut by 27% by 2014-15, despite the fact the cost of paying for it is rising.

Funding the scheme is said to now take up around half of all spending by the regional transport executives.

The transport bosses insist they have little influence over costs, while being legally required to fund it.

Because general funding for transport is also being slashed, the authorities insist the rising cost of the free bus passes means money supposed to be for other areas is having to be used. By 2022 they say frontline service funding is likely to be cut by three-quarters.

But David Wood, who chairs the group of six transport authorities, said the concessionary travel benefit for disabled and older people is hugely successful and that people want it to be maintained.

He added: ‘However, it cannot be right that the cost of providing what is a national statutory scheme, determined by national government, should create such a heavy funding burden for transport authorities in a way that threatens the future of the services that we provide for all members of our communities, including older and disabled people.

‘There will be little point in a free pass if the bus services that older people are using have to be withdrawn to pay for it.’

Norman Baker, the transport minister, insisted:

Last year we put in place reforms to help local authorities cut the costs of concessionary travel schemes and these reforms are already starting to take effect.

© Press Association 2012

PODCAST: Episode 3 – MEMORY

This is episode 3 of the Epilepsy UK Podcast. It was recorded at the monthly Epilepsy Support Group meeting held in Bristol, United Kingdom, on October 2012.

In this episode – we hear from Dr Margaret Newson, Clinical Neuropsychologist at Frenchay NHS Hospital (in Bristol), who will discuss Epilepsy and its impact on Memory.

Episode 03: Epilepsy and Memory (October 2012)

Audio Duration: 1 Hour 10 Minutes
[mejsaudio src=”http://archive.org/download/EpilepsyPodcastUk-Episode3Memory/ep_pods1_ep3_memory.mp3″%5D

Listen to this 1 hour podcast, to learn about how our brains and memory reacts to Epilepsy seizures, and why can’t we remember anything whilst a seizure takes place.

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Don’t forget to follow Bristol Epilepsy on Twitter for lots of updates! we are @BristolEpilepsy

This podcast is © Dsoundz Media ( http://www.dsoundz.co.uk ) and was recorded and edited by Sam Downie.
This podcast is episode 3 of the Epilepsy Podcast UK.